When little Jaxon Buell was born in August 2014, his parents learned that the infant suffered from Mycrohydranencephaly, which is a rare condition where brain tissue is replaced with fluid, instead. Doctors were certain that the little boy would not survive the week, let alone a month. But Jaxon is a fighter, and despite the odds, is now almost 15 months old, and recently had his very first visit with Santa Claus!
Jaxon’s dad, Brandon Buell posted a photo on Facebook of Jaxon staring at the family’s Christmas tree, and despite the odds, the Buell family sees a lot of personality in their beautiful son. Brandon said, “In 15 months of being with us, Jaxon is learning to talk, walk, speak, smile, laugh, communicate, can certainly hear and see, and is making strides to even eat on his own, showing promise of one day kicking the only machine that he is actually dependent on, his feeding pump, and all of this with the severe disability that he has, against the odds, and against the doubts that have been there since before he was born.”
The Buell family understands that Jaxon may not live very long, with Brandon saying, “Jaxon may ultimately live a shorter life, but he will, as so many other special needs children also will, impact and inspire more lives in their time with us than I or so many others will that do not deal with their struggles. For all of those who truly see, understand and embrace the real purpose of Jaxon’s life and story, we continue to thank you for supporting and being a part of it.”
