Minnesota is leading the way in ensuring newborns are screened for all treatable metabolic and functional disorders that the American Academy of Pediatrics deems necessary, such as cystic fibrosis and PKU. While the testing is not mandatory, parents have the choice to opt out if they are uncomfortable with the state having access to their child’s personal information.
This testing has the potential to save lives in the future, as it allows for early detection and treatment of congenital conditions that may otherwise go undiagnosed until it’s too late. Despite concerns raised by a nurse who refers to the state’s database as a “baby DNA warehouse,” Governor Pawlenty assures the public that privacy protections are in place.
In fact, Governor Pawlenty has instructed the health department to make the process more user-friendly for parents who wish to opt out of the screening. Despite any concerns about government ownership of test results, it is clear that this testing is beneficial for both parents and their children.
Imagine the opportunity to have your newborn tested for 54 treatable diseases at birth. Would you take advantage of it?
